Friday, October 25, 2013

What if....

What if....

Those two words separately have little meaning but combined has a powerful way of influencing your life. To say those words makes you enter the road to doubt and hesitation. We want to use the combined words to prevent us from self-harm but sometimes don’t realize the harm it does to self. I adopted the words into my language and even today fight to keep them at bay but they were once so pronounced in my life. The words 'what if' truly came into my life at a specific moment. I would have to say the ‘what if’s’ of my life were truly born during the early days of me discovering that I had HIV.

In those early days after walking home from the doctor and trying to make sense of the news he just shared to me of my status there were two thoughts running around in my head. Am I going to die of this disease and what will people think of me? I wanted to share the devastating news right away but the ‘what if’s’ came pouring in filling my brain with uncertainties. Questions that I couldn't answer but I still produce came, questions such as what if they reject me. What if they blame me? What if they tell me this is what happens to people who are just like me, gay? Knowing that to share my news I also had to reveal my other secret, my sexuality, that was sheltered by my ‘what if’s’. I think no matter how hard I tried to find a workable solution in the end each scenario had the same outcome and not in a good way.

My life went on but I wasn't happy in the space. I was living in a house made of fear, surrounded by walls of missed opportunities and covered with a roof of depression. Although I wanted to evict myself from that space I didn't have the nerve to. You can say that the ‘what if’s’ kept me prisoner as I looked out the window envy of others who were living their happy lives. But that door before me gave me pause and remained lock despite me holding the key in my hand to release myself.

Another aspect of living a ‘what ‘life is recognizing the limits it places on you when it comes to dating or forming a relationship, sexual or non-sexual. This is when your doubts go into overdrive. Some classic thoughts I had were:
What if they find out about my secret?
What if they discover my medication in the bathroom cabinet?
What if they fall in love in love with me?

I then asked myself what if I start to live a negative life? Not negative in the state of mind way but negative as if I was never diagnosed with HIV. That all my interactions about my health were a lie despite who was asking, whether it was my doctor, my family, friends and those I was interested in romantically. That my response to them was that I am HIV negative and no way am I one of those people. Knowing that in my responses I was living a life created by my ‘what if’.

I was so scared of my ‘what if’s’ coming true and living in such a place of fear it seemed my life was on freeze frame. Yet there was a small light of hope when I decided to let my shield down and not use my status as a barrier. When I finally accepted my status and stopped denying myself the ability to love. You would think the ‘ what ifs’ were exorcised by me freeing myself but even in that space of me sharing my status with someone in my dating life I developed a different strain of ‘what ifs’.
They were now reformulated and questioned:
What if I give them HIV?
What if I re-infect them or they re-infect me?

And the one that really made me pause
What if I die on them?

My language of what ifs were truly making my life have less value and if I examined all the questions of my ‘what ifs’ I would see that it was mostly for the benefit of others and what they thought of my life. In my unselfish moment I was being selfish to myself and denying my own self a rich full life. Ironically when I questioned what if I die on them I should have looked at myself as I was already slowly dying mentally and not because of my HIV status but because of my own self-inflicted limitations. My ‘what ifs’ had dictated my movements, my non-movements, my dreams and goals and I was tired of it stealing my joy. I had heard of the benefits of jumping into the waters and learning to swim but I was so scared of drowning that I stayed on secure ground.

I can say that my life took a change for the better when I finally quieted my ‘what ifs’. It took finding who I was and recognizing I was more than HIV. I rewrote the definitions of ‘what if’ and instead of it ending with a negative conclusion, replacing it with positive outcomes. I had to let go of trying to control the endings and just let it happen and then deal with the ramifications good or bad. And in that moment recognizes it was not the word ‘what if’ that I had issues with but it was the word control. I wanted to be one who decided to reject me. I wanted to control who knew my status. I wanted to be in control because handing the keys of my control to others I felt made me weak and what if they couldn't handle the responsibility.

By removing or limiting my ‘what if’ and lessening my control I started to see the difference it made. With the shield down more people came into my life. And yes some people did leave but they only made room for others. And the greatest benefit was I started to truly live. I started to reclaim my dreams. Things I thought I could never do I accomplished:
I went back to school and got my degree.
I quit the unsatisfactory job and fell in love with one I liked
I learned to swim literally as I always wanted to but had a fear
I started a blog just for me and a few friends and now helping strangers navigate the world of HIV


I would never had accomplish any of these things if I had never stop trying to be always in control and having the ‘what if’s’ run loose in my thinking.
I finally used my key and left that house of fear.

Friday, October 11, 2013

Remembering Aaron

Aaron Burks represented many things to different people. For some he was that soulful voice that he shared with others as he sang in choirs sharing God’s words in song. For some he was that HIV specialist who let those affected and infected by the virus know that there are many more tomorrows and that they are not alone. For some he was the father who raised beautiful children and gave them lessons that said you can do anything and everything you want to in this world. For me he was a dear friend who showed me that no barrier was too high to climb or overcome and any obstacle can be moved out of your way.

Aaron Burks left us this past August from a rare blood disorder and a huge hole has been left in his absence. I had met Aaron so many long years ago. When you met Aaron the first thing you saw was his smile and his Hollywood dimples. You couldn't help but smile yourself as he radiated warmth of friendliness and confidence. You couldn't help not to be drawn in by the friendly spirit he exuded. It was a genuine love that radiated from him.

My admiration of Aaron of course goes beyond his physical aspects. Looking back over his life he silenced those who said ‘you’ll never be able to do that’ as he did it. Aaron like me was HIV positive. So he was familiar with the stigma and the shame of having this disease. He knew about compromised immune systems as he sometimes fell in the danger zone with his health numbers simply because that was the hand he was dealt. But still that didn't stop him.

He also faced another demon as he had an addiction to drugs. This was a hard battle especially having HIV and one not often discussed when we’re talking about the virus. As I had to learn his addiction was not one of choice but a circumstance that was in his life that wasn’t in the norm. Even as a friend I sometimes felt helpless not feeling I could help with this battle. Mostly because I didn’t understand his battle or the shoes he walked in. Most people would sit back and judge Aaron’s life but not understand completely the process of addiction. I thankfully never judged but took my turn along with others to let him know that when he was through the storm we were going to be there waiting for him. But even having the addiction didn’t stop him.

You would think Aaron had enough to go through but he faced another wall when he was incarcerated. He again represented untold stories of those having HIV and living a life behind bars. I was very worried at this time as it was hard enough to live with HIV in open society and now to be in a place where you’re locked away from valuable supportive resources and limited access to exceptional health care. Not to mention contained homophobia and stigma that had the ingredients to lead to physical harm. Those moments my prayers went to Aaron and thankful God gathered the many prayers for Aaron that his loved ones sent and shielded him until he was with us again. You would think that facing so many tests Aaron would fold and crawl in the darkness. You would think wrong as even that didn’t stop him.

To have his life of imperfections Aaron was not stopped by it as he took all the misfortunes that were handed to him and flipped the script on it. He fought back the forces that lead him to addiction and walked a different path. He looked in the mirror and didn’t say, “because of my former jailed life I will have limited opportunities”.  Instead he made his opportunities and removed any fear and established a new career with a great nonprofit in Minneapolis called the African American AIDS Task Force, where he shared his life and experience of living with HIV and helped others, eventually working for the State of Minnesota helping even more.  He did this not to settle but he knew it was his calling and he answered it. With the love of God he accepted his life and mission and gave examples that despite what circumstances one has endured, it is for a reason. A reason we may not understand or see at that moment but God does have a plan. Don’t give up and don’t give in. Aaron did neither. He refused to let HIV and other factors excuse him from having a blessed life.

Aaron found true love with another great soul as they found each other in this crazy thing we call life. His name was Michael and you can say Michael was an angel in disguise because he promoted the love they had for each other and made it into a new life for them both, eventually sharing a new life together where Aaron moved thousand miles away to New York City to begin another chapter. Let me just say most people I know are scared to move to the next block and some are scared to move from that mental space but Aaron showed no fear. Even that didn’t stop him.

In his recent passing it has made me look at my own life and what excuses have I made for myself for not living my full potential. Living with HIV have I told myself I can’t do this or that because of my state of mind? Yes Aaron was in prison but he was still free. Some of us are free but still are in prison. Looking at our life beyond the bars of which we hold the key. Aaron has shown how easy it is to unlock your true potential and yes brother even in your passing I have to say that you will continue to be that motivator for life and your song and beautiful voice will continue to guide many, including me. And despite your death I can say you are the impossible as even that won’t stop you.

Love you dearly